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Patrick Transposition of the Vessels VSD, pulmonary stenosis 2 surgeries at PCH
At 18 weeks pregnant I came to find there was a problem with the pregnancy. I was sent to go see Dr. Marcias. I found out that Patrick had a hole in his heart, a fairly large one. At that point, that's all that was found. 6 months pregnant, I found out that he had transportation of the greater vessels. I was a single mom taking all this in, wanting to just fall apart. Everyone kept saying he would be fine, but I couldn't shake the fact something else was wrong.  Patrick was born at 35 weeks old. I was happy, but then I saw him and that there was a problem. They had to give him three shots to get his heart to work. I only got to hold him but for a second. I had nurses and doctors mad at me. I would not sleep at all, I was getting scared. Patrick was beautiful. I had people telling me he would not make it. Three days later I found his heart was failing. Needless to say, they had not found everything, it was just the beginning. The day I got discharge I went home to eat, and get a shower I was promised I could hold my baby that day. I came back two hours later, they had him covered up. I freaked out thinking my son was gone. They had to put him on cpap to help him breath. He came off it a few days later, and they were going to let him go home to wait till his surgery. Patrick had an amazing nicu nurse who was good to us. She stopped it, and told them he needs the surgery now!! There was no surgeon at UMC to do my sons surgery so we waited. They came to decide to send him to PCH.  Three days I waited for a transport for my son. Patrick grew very, very weak. I finally blew my top, and broke down, and demanded that transfer. Patrick got to PCH, and they did a week's worth of testing on everything. He had VSD, transportation of the vessels, pulmonary stenosis, and x chromosone, plus conial atresia of the nose, and a bad refux. Wow, that was a lot! They told me if they had wait any longer patrick would not of lived! August 25 was his surgery, and I thank god every day Dr. Pearl fought for my son. The day of his surgery, I over heard nurses say my son would not be right I cried so hard! I went to my room, and cried and prayed for my lil boy cause I was told they couldn't stop his bleeding. Dr. Pearl kicked a surgeon out cause there was a fight. She told him to let my son DIE!! He did not give up, and kicked that surgeon out! It seemed like a nightmare. Patrick has had both his surgeries: the bt shunt, and now the Glenn and is amazing!! They scanned Patrick's brain to see if there was damage, and it came back perfect! They call my son a miracle baby cause of the fight he put up. He was nicknamed fighting Joe Lewis. Patrick is now on a button, and gaining weight well. I'm hoping for him to come off the button soon, and I'm so proud how far he has came.
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